Now don't get me wrong, there is always a lot of activity thanks to the Endometriosis Research Center, however today's post to the link below (featuring an article on endometriosis) in particular got a lot of attention.
Here is the link:
After the ERC posted this link on it's facebook page, many of us read the article and were outraged.
In short, the article states that "Many studies show that low BMI, delayed pregnancy, poor nutrition, teenage pregnancy, poor personal hygiene, low body immunity, prolonged mood disorders and severe hormonal disharmony are the causative factors of Endometriosis. " This could not be more inaccurate.
The Editor's Comments section was not present nor were the Reader Contributions/Comments when the ERC originally posted the link to it. However, the good that came of the article being posted is that we all came together in a united front with knowledge/experience on our side and responded. Readers submitted comments that were published over the course of the day and the editor added comments to the beginning of the article that includes an apology to readers.
The ERC also submitted a statement that was posted at the end of the article, please take a moment to read it. It is one of the best written statements that articulates what many of us that have been diagnosed with endometriosis thought of the original article.
I thought I'd post this because I was genuinely touched by the sisterhood that I feel with the other women also diagnosed with this disease. I have decided to give a name to all of us that have been diagnosed, from here on out I will refer our sisterhood as - The Sisterhood of the Traveling Implants (if you have been diagnosed you totally get why this fits us).
I have shared some of my experiences with endometriosis on this blog, although not nearly as much as it has impacted me. Endometriosis is a very personal thing to me, I try not to complain about much, but I have had 2 laparoscopic surgeries already. This disease impacts me almost daily, I just try to continue to have a positive perspective. Even after having been told that I may not be able to have children and beginning on a path to find fertility... I tried to remain positive and eventually we were lucky enough to conceive (this is not the case for many with the disease), you can read more about how I found out about that in a post I titled I Might be Growing a Penis if you're interested.
Any who, thank you again to the Endometriosis Research Center for your continued work and passion on this topic. Also, thank you to the other women who responded to this article who belong to this Sisterhood! From the bottom of my heart - I thank you!